Wednesday, 22 October 2014

Cloudy with a chance of showers

*DISCLAIMER* 
As bleak as this one may read, I've written it out of frustration, not because I'm giving up. Tomorrow's another day.

"Those long, long days of no escaping." 
-- If Only, Queens of the Stone Age

I have been alive for 15,597 days.

If I had to guess how many of those days I have been completely symptom free, it would be a very small number.

There have been hours I have been symptom free.

But never a day.

I can honestly never remember a day when I woke up, made it through the day and went to bed without experiencing at least one symptom.

Each and every day I experience at least some negative self-talk, low self-esteem, low energy, feelings of guilt, hopelessness and despair, anxiety or depression.

Sometimes a combination of these, sometimes all of them.

Contrary to what many may think about depression and anxiety, they do not start and stop like a cold or a broken limb.

They are always there, sometimes raging through mind and body, sometimes fading into the background so as to be almost silent and invisible.

Almost.

Tonight has been a difficult night because of the frustration I am feeling knowing I will never be cured, never made whole.

I started thinking about this after hearing former NHL goalie Clint Malarchuk on the radio this week. For those who don't know, he played most of his career in the 1980s and came within a hair of dying on the ice during a game when a skate cut his throat.

Quick action by the training staff saved his life that night. However, he ended up becoming seriously mentally ill, attempting suicide later on.

He has just released a book on his career and subsequent mental illness.

During the interview he repeatedly spoke about how there is no cure for his condition and that he has experienced serious relapses.

I'm not fond of using the term relapse because it implies the person is symptom-free before becoming ill again.

That's never been my experience. For my entire adult life -- and as far back as I can remember of my childhood -- I don't think I've had a symptom-free day.

Each and every day I experience some aspect of my illness, some days more strongly than others.

Today, for example, was the first time since Sept. 7 I've run 10K. Rather than be happy with my result, I immediately started to beat myself up for going so long between 10K runs (never-minding that I've done three 100K bike rides and several short runs in that time).

This leads me to thinking things like, "Big deal. So you ran 10K. How about getting a job? How's that going?"

That leads me to thinking about how I haven't been in an office for three years and the fear I'll break down under the pressure of a new job.

And all of this happens in less time than it took you to read about it.

So then I have to start the process of positive self-talk to try to redirect my thoughts.

It's exhausting.

I wish just one day my brain would work like it should.

Just one day.

I've tried everything -- medication, one-on-one therapy, group therapy, in-patient treatment, out-patient treatment, cognitive behaviour therapy, dialectic behaviour therapy, endurance training. Just about everything short of electroshock therapy.

Most days I feel like Sisyphus, rolling that rock to the top of the hill only to watch it roll back again.

So what keeps me pushing it up that hill day after day?


Claire.

Paula.

My family.

My friends.

A good book, a long run, a snowstorm, a day by the water.


Life.

Thursday, 16 October 2014

The wall

I'm in a slump.

I've been so down the last three weeks I've only been out for two runs and two rides in that time. It's like I've hit the proverbial wall.

I used to look forward to my runs and rides but lately I have no motivation at all. I've put five pounds back on and I'm wallowing in self pity.

I keep telling myself, tomorrow's Day 1 and then I come up with excuses to not run/ride. I feel like I'm sliding back into my old ways.

It's so frustrating because I had kept up with it for 16 months. It's like a switch went off in me somewhere.

The runs themselves are getting more difficult too -- not so much physically but mentally. I used to consider anything less than 10K a waste of time and now the thought of running further than 5K seems overwhelming.

I think looking for work for the last six months is starting to take its toll. I've got an interview Monday but it would entail relocating which I'm not sure I want to do for a bunch of reasons.

I just want to get back to loving running.

Maybe I need to find some new routes and put some new music on my ipod. I think I may have negative associations with them now -- I hit the wall mentally at the same spots on my standard route.

I don't think this is my depression getting worse. I'm still getting up, getting dressed, looking for work, spending time with Paula and Claire, eating (too much lately!) and generally trying to get on with my life.

But damn that wall seems high these days.

Wednesday, 24 September 2014

A hard gift

There's been a new challenge trend spreading through Facebook lately, passed from friend to friend like one of those old-fashioned chain letters.

A friend challenges you to list three things per day for one week that you are grateful for.

I managed to whip through 21 things in one go since I have a lot to be grateful for.

However, it got me to thinking about my major depressive and generalized anxiety disorders.

Is there anything in them I should be grateful for?

I know there is a lot I hate about them.

I hate how they make me feel and how they distort the way I view the world so severely that they make living so very difficult on my worst of days.

I hate them for taking so much from me -- joy, happiness, continued success -- and derailing my life over and over again.

I hate that they cause my family and friends so much worry and anguish when I am really ill.

I hate the fact that, statistically speaking, I will continue to suffer bouts for the rest of my life and that there may never be a cure in my lifetime.

With so much to hate about them, there seems to be no reason to be grateful for them.

But when I looked hard at them, I found there were a few things to be grateful for.

My depression is a part of me, entwined with my DNA. It is just as much a facet of my personality as my sense of humour, my intelligence, my empathy, my capacity to love. Without it, I wouldn't be the person I am. Sometimes I wonder who that person would be, but then I realize it's taken me almost three decades to come to grips with my disorder and to, while not actually loving myself, not hate who I am.

My depression, when not in full bloom, makes me see the serious side of life. I truly believe my ability to be empathetic comes from being so finely attuned to things like social injustice and suffering in others. I found out Santa Claus didn't exist when I was 5. I had seen one of those infomercials that used to run in the '70s showing the incredible starvation in Africa, including pictures of young children with swollen bellies in the final stages of atrophy. Why, I asked my mother, was Santa bringing me toys and not bringing them food? What could my mother tell me but the truth?

My depression has strengthened my bonds with my family, including my wife and daughter. In group therapy I've met dozens of people whose families did not support them, usually through ignorance of the disorder. I, on the other hand, have been fortunate to have a family who, while they might not completely understand what I'm going through, offer me unconditional love and support.

My depression has allowed to me to see how many other people care about me and love me. When I'm feeling my worst, my self-esteem is low and my self-loathing is off the charts. But over the course of the years I've had a core group of friends who have stayed friends, no matter how sick I've become. And they accept me for who I am. 

My depression has led me to express myself through my writing and my music. I don't think I'd be nearly the writer I am today had it not been for my disorder. For reasons not yet totally understood, there is a disproportionate percentage of artists (of all different mediums) who suffer with major depressive disorder. The list is long from Hemingway to Van Gogh to Sylvia Plath to Jackson Pollock. One theory is that people with depression see the world more deeply than others and can tap into their moods more easily in order to create. I know my writing is better when I am more emotional, more raw, more ready to draw on my deepest feelings.

Finally, my most recent bout of depression has forced me to be off work for an extended time. Although I am eager to get back to work, it allowed me to spend more time with Paula and Claire. I also got to spend much more time with mom before she died, time I will be forever grateful for.

So there is some blue sky peeking through the boiling grey clouds.

I just have to remember to focus on the blue.






Tuesday, 12 August 2014

The elephant in the room


There will be a lot of talk in the coming days in the media about depression's version of the elephant in the room -- suicide.

As most of you already know, Robin Williams, the immensely funny comic and gifted actor, took his own life yesterday at the age of 63.

I've enjoyed his work since he shot to fame in the late '70s playing a manic alien in the sit-com Mork and Mindy.

Although he was initially known for his comedic work -- his stand-up routine once being referred to as Dostoevsky on acid -- he moved seamlessly into serious acting. I still find his role as the boarding school teacher Mr. Keating as one of the best performances I've ever seen.

After one of his students commits suicide, Williams sits at the student's desk and opens one of his books before crumpling with grief.

It turns out the grief he displayed in that scene was not far off from his real grief that lay inside, mostly invisible to the general public. (It starts at 2:30 of this clip)


 

Williams struggled with substance abuse (mostly alcohol but also cocaine in the 1980s) and depression for more than three decades. He recently spent time in rehab, once again for alcohol.

And for reasons that would only make sense to his shattered brain, Williams decided enough was enough. He hanged himself with a belt after making what appears to be an unsuccessful attempt to slit his wrist with a pocketknife.

Williams' riches, fame and talent were not enough to keep his depression at bay. And this should serve as a sharp reminder of how insidious mental illness is -- it can destroy someone inside while the person on the outside seems relatively normal.

So let's talk about the elephant. 

This may not be easy for some of you to read, but it's important we talk about it, mostly because it is hardly talked about at all. For example, when was the last time you saw an obituary list suicide as the cause of death? It happens all the time but the stigma and shame attached to it are so strong, it's usually not listed as a cause of death in obituaries but you can usually figure it out if the family requests donations for mental health agencies like the Centre for Addiction and Mental Health (CAMH).

I've been told point-blank by some people when I've broached the subject, I shouldn't talk about it. They think it's fine and good to talk about my depression but if I admit publicly to thinking about suicide, that would damage my reputation permanently and make people think differently of me.

To that I say I've been open about my illness to try to reduce the stigma attached to it. To ignore suicide would only serve to paint a partial picture and it would also be a disservice to everyone who has lost their battle with depression. Those who survive have to tell the stories of those who don't.

Statistically, there are about 3,500 suicides in Canada each year, and it is the 10th leading cause of death for both sexes and seventh for Canadian men. It falls just below colon and breast cancer in terms of overall causes of death.

That means that depression and/or substance abuse-related depression kills 3,500 people each year. If these deaths were caused by, for example, a new type of virus, you can bet there would be screaming headlines and a concerted effort to find a cure or at least try to treat the symptoms in an effort to save lives.

However, the stigma attached to depression -- let alone suicide -- is so strong, many (if not most) people don't want to talk about it.

I have had recurrent major depressive and generalized anxiety disorders for most of my life, accentuated by four major breakdowns at the ages of 18, 22, 29 and 39. The first one lasted several weeks, the second and third ones for several months and the third one for more than two years.

Despite that I have never attempted suicide. 

But I have thought about it, thousands of times over the years, going so far as to plan how I was going to do it. This is referred to in psychiatry as "suicidal ideation." In fact, it was the overwhelming desire I had to kill myself as an 18 year old that lead me to finally admitting to my parents how sick I was. It was the first time I asked for help.

Luckily, I was still thinking just clearly enough to know I was a danger to myself and that I needed immediate crisis intervention.

The same scenario played out in October of 2011, leading to my first hospitalization for depression.

You will no doubt hear in the coming days from those who don't understand that Williams committed a selfish act.

How could he be so selfish, the old refrain goes, and do that to the ones he loves?

For those of you looking for some sort of complex reason, I'm here to tell you there isn't.

People with mental illness kill themselves for very simple reasons.

The main one is to stop the pain they feel to the very core of their being.

Because, you see, depression is not just about mental suffering, it is also accompanied by physical suffering. At my lowest point, a week after being released from hospital, I looked like I had aged 20 years. I walked with a stooped shuffle, drawn in on myself, the lines of pain etched on my face.

When my brother saw me then for the first time in months, he burst into tears, my transformation was so dramatic.

Those of us seeing the world through the prism of depression see death as the only release from our pain. 

'I've tried medication, therapy, exercise, everything,' we think. 'I'm never going to get better. I'm tired of putting my family and friends through this.'

These thoughts are easily counter-balanced when we're feeling better (You won't always feel this way. It will lessen, just as it has in the past. You would hurt the ones you love, not relieve them of any burden.) but when depression has us in its jaws, these more realistic thoughts don't come easily, if at all.

Then there are the times a person with a mental illness will pass through a crisis in which they have talked about suicide and then rapidly improve and seem normal to others. They may even seem happy. 

This is a very dangerous and deadly sign. It can mean the person, in a moment of clarity, has decided they can't go back to feeling depressed.
British author Virginia Woolf touched on both of these reasons -- ending the pain and avoiding yet another relapse -- in the note she left for her husband.

Dearest, I feel certain that I'm going mad again. I feel we can't go through another of those terrible times. And I shan't recover this time. I begin to hear voices, and I can't concentrate. So I am doing what seems to be the best thing to do. You have given me the greatest possible happiness. You have been in every way all that anyone could be. I don't think two people could have been happier until this terrible disease came. I can't fight it any longer. I know that I am spoiling your life, that without me you could work. And you will I know. You see I can't even write this properly. I can't read. What I want to say is I owe all the happiness in my life to you. You have been entirely patient with me and incredibly good. I want to say that everybody knows it. If anybody could have saved me it would have been you. Everything has gone from me but the certainty of your goodness. I can't go on spoiling your life any longer. I don't think two people could have been happier than we have been. V.


After writing this note, she went outside, filled her pockets with stones, and waded into the River Ouse.

She was 59.

******************

If someone you know has talked about suicide, take it seriously. They are not looking for attention, nor are they trying to be overly dramatic. Talk to them about it and, if you feel the person is a danger to themselves, call your local mental health crisis line or 911.




Tuesday, 17 June 2014

Sunrise

It was 365 days ago today that I dragged my sorry arse off the couch, put on a pair of old running shoes and headed out for a "run."

Although I was only able to run for 60 seconds before having to walk, little did I know how far those first plodding, gasping steps would take me.

I was at a very low point. Not my lowest, but pretty close. I was still severely depressed, wracked with anxiety and overweight. I was eating for comfort, gaining weight because of it and then feeling bad about the weight gain. So I'd eat for comfort. And so on.

After a physical and a mild scolding from my doctor, I looked up a Couch to 5K program and started running.

It wasn't easy. In fact, for the first several weeks I was miserable. I'd also adjusted my diet, cutting way back on junk food and journaling every single morsel I ate.

Slowly I started seeing results, both physically and mentally.

The weight started to fall off and I had more energy.

I began looking forward to my runs as a way to reduce the stress I was feeling being on disability. I liked it so much, I ran hundreds of kilometres straight through the winter, in snowstorms and temperatures as low as -30. I think that's one of the things I'm most proud of.

Over the last 12 months I've also:
  • Lost 30 pounds (and kept it off)
  • Run more than 1,500K
  • Run a half-marathon
  • Run a distance of 15+K 32 times
  • Run a distance of 21.1K+ 15 times
  • Run a distance of 30K+ 3 times
Yesterday I ran my first sub-30 minute 5K.

Plus I've completed close to 1,000K of mostly trail cycling, including three 100K rides.

Losing my mom last December was earth-shattering but I have no doubt I've been able to manage it due to my family's support, my medication and therapy, my new-found love of endurance training and the support of many of you.

I also have no doubt it was my new-found appreciation of fitness that helped me crawl out of the mental pit I had been stuck in for more than two years.

Did it cure me? No. There is no cure for recurrent major depressive disorder. But it did -- in part -- push the darkness back enough for me to turn my face to the sun again.

I'll be running my second official race this Saturday in the Barrie half-marathon. Claire will join me by running in the kids fun run.

It's nice to feel the sun again.

Monday, 5 May 2014

Failure

"Failure is not an option." -- Gene Krantz, Apollo 13 flight director*

It turns out failure is an option.

In fact, it's always an option, as I found out today. 

I planned to run 42.2K, the distance of a full marathon. My longest run to this point was 32K. I'd also done 30K, 26K and about a dozen 21.1Ks since I took up running last June.

I had to pack it in today at 26K. It was my second attempt at running a 42.2. The previous time I had to quit at 25K.

Everything seemed optimal for the run. I took a week off to taper my training. I loaded up on carbs the day before. I went to bed early and I felt great this morning. It was warm enough for shorts and there was very little wind.
I even posted on Facebook about my attempt in a way to add a little more motivation. Kind of like Cortez burning his ships to motivate his men to greater exertions in conquering. When there's no way back, you're more apt to forge ahead with greater effort.

The first 10K were fine, although I did experience some numbness in my left foot. I kept my pace deliberately slow so I would have plenty of energy for the second half. 15K came and went with no issues.

It wasn't until I hit the half-way mark that I started to run into some problems. Well, really just one problem.

My brain.

Instead of focusing on small goals, like the next two kilometres, I started to think about the whole remaining distance. And once I started thinking about how far I still had to run, I couldn't stop.

I tried some of my old mental tricks. I thought about mom and how tough she was in the face of all her illnesses. I thought about how badly I wanted to finish and visualized crossing the finish line at my driveway.

None of them helped.

So, for the second time, I had to be rescued -- this time by my good friends Paula and Dave. Paula ran the Mississauga Marathon yesterday. I'm so proud of her.

But as I was sitting on the stairs of a Masonic Hall on St. John Road in Innisfil, all I could think of was how I had failed yet again. And that lead to me thinking about how I didn't get that job last week. Which made me think of how long I've been off work. Which overwhelmed me with hopelessness.

See a pattern? This is how someone with depression spirals downward in a few seconds.

This time, though, instead of letting it get the better of me, I started to think about the nature of failure.

We live in a world that doesn't like to admit failure. Oh sure, we talk about learning from our mistakes, we may even work in a place that pays lip service to encouraging employees to admit mistakes as a way of improving the organization. But let's be honest -- few people like to admit failure and some will even go to great lengths to cover up or minimize a personal failure.

Did I fail today? If my goal was to finish 42.2K then, yes, I did fail.

But as Dave and Paula pointed out on the drive home, there are other ways of looking at it. While I may have "only" run 26K, Dave asked me to consider how far I've come since last June when I started running. Back then I could only run for 30 seconds at a time. Now I can run for hours at a time.

I was also running solo. In a race, you get inspiration from spectators, other runners and there are plenty of distractions to keep your mind occupied along the route. Today it was just me, a GPS watch and the seemingly never-ending road.

So, considered in a larger context, today could be viewed as a more qualified success, rather than abject failure.

I applied that same thinking to last week's job interview. If I was to measure success by being offered the job, then I failed.

Another way of looking at it is that it was my first job interview in more than four years. It was also the first time I was back in a professional setting in more than two years. Considering how ill I was just a year ago, it was a fairly big deal to be able to handle the pressure without caving.

The lesson in all this?

I was told over and over again in therapy to be kinder to myself. As my counsellor told me, "You need to talk to yourself like you would to a friend."

My wife Paula is very good at helping me remember this, saying I'm always too hard on myself. Her and Claire are my biggest fans and make me feel good about myself.

I would never call a friend a failure for not finishing a race or not landing a job.

Time to start talking to myself as a friend.

*Kranz never actually said this, although the quote was attributed to him in the movie Apollo 13.


Tuesday, 29 April 2014

Stigma

I had a job interview Monday.

I didn't get it.

While I'm disappointed -- it's the first interview I've landed after sending out about 30 resumes -- I'm not looking for pity. I'll pick myself up and move on.

(For those of you who don't know, I'm now unemployed for the first time in 16 years, having resigned recently from my previous employer.)

However, the interview itself lead me to think about a few things regarding my mental illness.


As happy as I am that former Olympian Clara Hughes is out there banging the drum to reduce the stigma around mental illness, I've got to think disclosing your condition when you're, well, Clara Hughes, elicits a much different reaction than when you're, say, me.

There are some facts about me that are very public, some that were made public by myself, some that were made by others.

Regardless of how they were made public, they're out there.

And the number one fact is...I have a mental illness, namely recurrent major depressive disorder. I've had it for as long as I can remember and I will have it the rest of my life. There is no cure.

For most of my life, I was ashamed of my condition and did the best I could to hide it (never very successfully I might add). I hated who I was and I surely didn't want to let anyone see the true me, the one who didn't care if he lived or died many days, who wished for death on the really bad ones.

I could get by in polite society by putting on a brave face at work and in public and only take the mask off when I got home.

However, there came a time at my two previous jobs where my illness was starting to impact my work and it was noticed by my managers.

In both instances I disclosed my illness to try to help them understand why I was acting the way I was.

In both instances it made things worse.

I was told by one manager not to use my depression "as a crutch."

I was asked by another -- after I had come back after some time off -- how I could assure them I wouldn't relapse.

I asked him if he would ask a cancer survivor that question.

He didn't answer.

Which brings me back to my interview. It was made public in an ongoing court case in which I was tangentially involved that I was off work on long-term disability. It's a matter of public record and if you google me, it comes up on the first page of search results.

While I know a prospective employer can't ask you why you were on disability, they are surely going to wonder why I was and why I didn't return to my employer when I recovered enough to return to work.

And this is where the stigma associated with mental illness rears its vicious head.

If I said I was diagnosed with cancer, underwent treatment, beat it and was looking to get back to work, I would -- more than likely -- be praised for my heroic fight and recovery. I doubt it would be held against me (and would you really want to work anywhere where it was?)

Let's now substitute "cancer" with "major depressive disorder." Given my experiences with disclosing my condition, I wouldn't hold out hope on a positive outcome. 

For some reason, most people don't want to see the brain as an organ, no different from a pancreas or a heart. It can become ill just like any other organ, but most people treat that illness differently from, say, diabetes or heart disease.

You may ask, "Why not just hide it if it's going to hurt your chances?"

Two reasons.

First, it's a matter of public record. If I don't address it and someone in HR did a google search on me, it would look like I was hiding it.

The second reason is far more important.

For too long I lived with the crippling shame of suffering a mental illness, afraid people would think I was unstable, dangerous, crazy.

For too long I kept my condition secret from all but those closest to me.

Never again.

I have a mental illness.

If someone can't accept that then that's someone I don't want in my life.

I am who I am.

And, after 42 long years, I can finally say that's someone I don't hate any more.